Hello
weve not posted in along time a lot has been happening,well first of all thats Andrew now in primary 2 and he is loving it hes coming on so well with his indapendence hes now feeding himself using both fork and spoon and can feed himself from yoghurt tubs,also on the 21st November Andrew started walking officially unaided it was amazing to see i cried for days after,he was doing so well untill he fell at his out of school club and burst his nose open,he is now away back to the beginning to scared to walk along in case he falls again he will hopefully get their he just needs to build his confidence back up.
Andrew has also been having a few seizure which had lead to him being put on Epilim as well as the Keppra,Andrew continued to fit so his Epilim was uped to 7.5ml morning and night and his Keppra 2.5ml morning and night,Andrew fits are getting worse,the drs at the hospital are not to sure why this continues to happen,but hopefully we will get to the bottom of it soon untill then Andrew has to have colobzam if he has 2 or more drop seizures a day,if Andrew is to fall into a seizure we have now to administer 0.8ml of Epistatus,as before he was on 0.4ml but it wasnt working and Andrew contunied to fit even when we arrived at the hospital,but we will see what happens here weve not had to use 0.8ml yet so were hoping we wont need to and that all the meds hes on will help.
Andrew been off school the last few weeks as hes had the cold,but with Andrew immune system beng so weak hes had it for longer than usual hes also being sick alot which we cant explain,he did go back to school but was only their a few days and was sent him ill again so hes been off the last week or so,spending time with mummy and getting upto mischive,hes getting better and should hopefully ba back at school tomorrow but their is only 2 days left before they finish for christmas,so ill see in the morning how i feel abput sending him to keen incase he gets ill again and is ill through christmas.
Well thast all for now hope you all have a great Christmas and a happy new year.
Love
Catrina,Nick,Angel Andrew and Darren
xxxxxxxxxx
me and my new glasses
looking cool
Sunday, December 21, 2008
Saturday, August 30, 2008
Findin out i have Angelman Syndrome
I have reposted this hope ypu all dont mind xxxx
This post is by my mummy
When i was pregnant with Andrew i went for my first scan at 16 wks and had blood tests done 3 days later the hospital call me telling me to come in urgently they had my results back as i was ill i asked for the results over the phone thats when i was told my baby was 1 in 54% chance of being born with Down Syndrome,i was only 17 at the time so the result should have be 1 in 2500 but they were the results of a 40 years old woman as they are more at risk of downs babies,when i went to the hospital a couple of days later the dr said to me that the chance of my baby being a mongo (his words) were very high and that i should get rid of it (again his words),i said no way would i do that and weather he was disabled or perfectly healthy its my baby and im having it.
My pregnancy was a bit of a nightmare near the end with all the early labour starting and stopping then on the 8 of August 2002 my baby Andrew came into the world at 12.25pm born a healthy 7lb 13oz he was just the most perfect baby i had ever seen and it was then i was told he was perfect no Down Syndrome.
We go him home 2 days later where he was a happy baby never cried but did start to lose weight fast then at 8 weeks every thing changed Andrew had his first fit and had Reflux he was taking in to hospital and keep in for a week for tests,at the end of the week we were told the fit was caused by the reflux and the tempature he had and were givin Gavascon to add to his milk.
For the next couple of years Andrew kept being sick and having the fits we were in the hospital more than we were home but they just kept saying the same thing over and over again,then we started noticing he wasnt sitting at the right time and my mum had noticed the
back of his head being flat,then we noticed no crawling or words we were getting concerned so we were referred to the Acamore Center(for children needing assesed) where the doctor assessed Andrew and referred him to Yorkhill Sick Kids Hospital for Genetics testing,we waited about 2 months for the results which came back 1 week before his second birthday,where we were told it was Angelman Syndrome,cant really remember much about that time as it all seems a bit blurry with the shock.
Then came all the test and appointments with the hospital where every thing became a bit more clear and he started getting seen at the Acamore Center for physios OTs speech and educational therapists and a dr which he saw every month and at Yokrhill by eye drs ENT drs and epilepsy drs.
Now were 3 years down the line and my boys is just perfect hes still the perfect little baby i had just that he now has Angelman Syndrome and we wouldnt change him for the world dont get me wrong he can be a handful at times but hes my boy and iv been blessed to have him in my life hes taught us alot and iv growing up so much knowing i have this special little boy that needs alot of care and attention,and thats what hes going to get from all of the family.
We all love our little Angel Andrew with all our hearts xxxxxxx
This post is by my mummy
When i was pregnant with Andrew i went for my first scan at 16 wks and had blood tests done 3 days later the hospital call me telling me to come in urgently they had my results back as i was ill i asked for the results over the phone thats when i was told my baby was 1 in 54% chance of being born with Down Syndrome,i was only 17 at the time so the result should have be 1 in 2500 but they were the results of a 40 years old woman as they are more at risk of downs babies,when i went to the hospital a couple of days later the dr said to me that the chance of my baby being a mongo (his words) were very high and that i should get rid of it (again his words),i said no way would i do that and weather he was disabled or perfectly healthy its my baby and im having it.
My pregnancy was a bit of a nightmare near the end with all the early labour starting and stopping then on the 8 of August 2002 my baby Andrew came into the world at 12.25pm born a healthy 7lb 13oz he was just the most perfect baby i had ever seen and it was then i was told he was perfect no Down Syndrome.
We go him home 2 days later where he was a happy baby never cried but did start to lose weight fast then at 8 weeks every thing changed Andrew had his first fit and had Reflux he was taking in to hospital and keep in for a week for tests,at the end of the week we were told the fit was caused by the reflux and the tempature he had and were givin Gavascon to add to his milk.
For the next couple of years Andrew kept being sick and having the fits we were in the hospital more than we were home but they just kept saying the same thing over and over again,then we started noticing he wasnt sitting at the right time and my mum had noticed the
back of his head being flat,then we noticed no crawling or words we were getting concerned so we were referred to the Acamore Center(for children needing assesed) where the doctor assessed Andrew and referred him to Yorkhill Sick Kids Hospital for Genetics testing,we waited about 2 months for the results which came back 1 week before his second birthday,where we were told it was Angelman Syndrome,cant really remember much about that time as it all seems a bit blurry with the shock.
Then came all the test and appointments with the hospital where every thing became a bit more clear and he started getting seen at the Acamore Center for physios OTs speech and educational therapists and a dr which he saw every month and at Yokrhill by eye drs ENT drs and epilepsy drs.
Now were 3 years down the line and my boys is just perfect hes still the perfect little baby i had just that he now has Angelman Syndrome and we wouldnt change him for the world dont get me wrong he can be a handful at times but hes my boy and iv been blessed to have him in my life hes taught us alot and iv growing up so much knowing i have this special little boy that needs alot of care and attention,and thats what hes going to get from all of the family.
We all love our little Angel Andrew with all our hearts xxxxxxx
Friday, August 8, 2008
We went to blackpool
My mummy is so silly she was meant to come on here and add pic of me and my angel friend Alastair we meet in Blackppol back in JUne but we all know what mummys are like,very forget full well mines is,silly mummy hehehehe
well iv added the pics hope u all like them xxxxxx
well iv added the pics hope u all like them xxxxxx
Happy Birthday to Andrew
Today is Andrews birthday he is a big 6 ,yes 6 how old is he getting im scared im losing my little baby,but i know he will always be my baby,just wanting to say happy birthday baby love you loads xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Wednesday, June 11, 2008
we went swimming today
Hiya everyone not posted in a while,but today we took Andrew swimming the first time in about a year,he usually hates the local pool as its to cold,he goes swimming in school about 3 times a week,well anyway today we were in the pool and Andrew has his little arm bands on and he was swimming all by himself he was sooooo cute just floating about laughing,then i put a wee rubber ring on and he was off,hes just so so so cute swimming about laughing kicking his feet,he just loved it he made me very very very proud to be his mummy even more prouder (prob not a word,lol) than ever,when the waves came on he loved it all the water splashing against him he was laughing so hard,i love my little angel so so much,i never knew it was possible to love anyone this much but it is and everyday my love just grows for him,i just love him millions,im very very proud.
Love Catrina xxxx
Love Catrina xxxx
Sunday, April 13, 2008
me and my wheelchair
Mummy has added a montage of pics of me in my whhelchair,i hope you enjoy it.
Love
Andrew
xxxx
Oh and P.S Alastair you better beware im fast cannot wait to race you,vroom vroom xxxxxxxxx
Love
Andrew
xxxx
Oh and P.S Alastair you better beware im fast cannot wait to race you,vroom vroom xxxxxxxxx
Thursday, April 3, 2008
Andrews getting another operation and he got his wheelchair
Hiya Everyone
Well as you all know Andrew had an operation in January to transfer his siliva ducts,but due to the operation Andrews glands is now blocked and causing him a little discomfort,he will need to get the gland removed its only a little operation will last about 45 mins and will be in for the night, so hes on the list the now and the operation should be in a few months.
Also Andrew got his first wheelchair yesterday he looks ooooooo cute in it,hes loving it,will get pics up of him in it soon.
Love
catrina
xxx
Well as you all know Andrew had an operation in January to transfer his siliva ducts,but due to the operation Andrews glands is now blocked and causing him a little discomfort,he will need to get the gland removed its only a little operation will last about 45 mins and will be in for the night, so hes on the list the now and the operation should be in a few months.
Also Andrew got his first wheelchair yesterday he looks ooooooo cute in it,hes loving it,will get pics up of him in it soon.
Love
catrina
xxx
Wednesday, March 26, 2008
its been a while
Hiya everyone
its been a while since we last wrote on here,just a little catch up,well my operation went well but a couple of weeks after i got a lump dr said my gland is blocked,he gave me some med and it took it away but its back again so have to go back on wednesday see what he says last time he said if it comes back will need to get an operation to take my glands out now thats not fair.
Also on wednesday i get my wheelchair mummy cant wait she says woohoo,silly mummy,it will be so much better than my buggy i hate it its way to small for me.
Oh and iv been walking loads too well 6 steps thats pretty far all by myself,well mummy says its when im to busy thinking something else like chewing my duck mirror that my angel friend Alastair got me,i start walking,so thank you Alastair and Jennifer we love the mirror,oh and Alastair everytime i stand up with the mirror in my hand mummy get the video camera out but im doing as you said,dont let her catch me lol lol.
Loads of love
Andrew xxxxxxx
its been a while since we last wrote on here,just a little catch up,well my operation went well but a couple of weeks after i got a lump dr said my gland is blocked,he gave me some med and it took it away but its back again so have to go back on wednesday see what he says last time he said if it comes back will need to get an operation to take my glands out now thats not fair.
Also on wednesday i get my wheelchair mummy cant wait she says woohoo,silly mummy,it will be so much better than my buggy i hate it its way to small for me.
Oh and iv been walking loads too well 6 steps thats pretty far all by myself,well mummy says its when im to busy thinking something else like chewing my duck mirror that my angel friend Alastair got me,i start walking,so thank you Alastair and Jennifer we love the mirror,oh and Alastair everytime i stand up with the mirror in my hand mummy get the video camera out but im doing as you said,dont let her catch me lol lol.
Loads of love
Andrew xxxxxxx
Friday, February 29, 2008
My Montage Of Angel Andrew
My Montage of Angel Andrew form birth to 5 years
music-Leon Jackson-When You Believe & Westlife-I Have A Dream
Enjoy
xxxx
music-Leon Jackson-When You Believe & Westlife-I Have A Dream
Enjoy
xxxx
Thursday, January 31, 2008
Tuesday, January 29, 2008
Silly Auntie Kimbie
Hi Everyone, Andrews Auntie Kimbie here, im so silly that i didn't realise that when i put a video of andrew walking onto his blog, it has brought up some random videos aswell. I do apologise, it was meant to be a suprise for Andrews mummy when she has a look once Andrew gets out of hospital. So just to let you all know, the video of Andrew walking without someone holding onto him is the top video, i am so proud of him.
Love Auntie Kimbie
xXx
Love Auntie Kimbie
xXx
Monday, January 28, 2008
Andrews operation 2nd time round
Andrew is going in to hospital tomorrow for his operation that was cancelled 3 weeks ago,so heres hoping that this one wont be cancelled again,keep a look on his blog and ill keep you all up dated xxxxxxx
Love
Catrina
xx
Love
Catrina
xx
Wednesday, January 23, 2008
wheelchair
Hiya everyone
Today we went for Andrews wheelchair assesment and he passed so hes qualified for a wheelchair he will ahve it in about 6/8 weeks so by the end od march it blue has a little cushion and saftey harness,hes going to look sooo cute,i cant wait to have him in it rather thanin that silly buggy i hate it hes too big for it.Well keep a look on ill be posting pics of him when he gets it.
Love
Catrina
xxxx
Today we went for Andrews wheelchair assesment and he passed so hes qualified for a wheelchair he will ahve it in about 6/8 weeks so by the end od march it blue has a little cushion and saftey harness,hes going to look sooo cute,i cant wait to have him in it rather thanin that silly buggy i hate it hes too big for it.Well keep a look on ill be posting pics of him when he gets it.
Love
Catrina
xxxx
Tuesday, January 22, 2008
Wheelchair
Hiya everyone
Catrina here well today is Tuesday and tomorrow is Andrew big wheelchair assesment its the day iv been waiting for,for a long long time,Andrew is way to big for his buggy his foot touch the ground and he can push the buggy backwards using his feet it drives me nuts.So hopefully in a couple of months Andrew will be wheeling about in his new Wheelchair let hope so.
How cute will Andrew look in a wee wheelchair,soooooo cute
Love
Catrina
xxx
Catrina here well today is Tuesday and tomorrow is Andrew big wheelchair assesment its the day iv been waiting for,for a long long time,Andrew is way to big for his buggy his foot touch the ground and he can push the buggy backwards using his feet it drives me nuts.So hopefully in a couple of months Andrew will be wheeling about in his new Wheelchair let hope so.
How cute will Andrew look in a wee wheelchair,soooooo cute
Love
Catrina
xxx
Thursday, January 17, 2008
my new bed
Hiya everyone
Well today is the day after my sleepies in my new bed and i loved it i went to bed at 7 and got up at 8 this morning hehe it is soooooo comfy cant wait to go to bed tonight hehe.
well look at my pics u can see my bed.
Love and Angel hugs
Andrew
xxx
Well today is the day after my sleepies in my new bed and i loved it i went to bed at 7 and got up at 8 this morning hehe it is soooooo comfy cant wait to go to bed tonight hehe.
well look at my pics u can see my bed.
Love and Angel hugs
Andrew
xxx
Wednesday, January 16, 2008
My New Angel Bed
Hiya Everyone
Today im getting my new angel bed fitted,my granpa Jim is doing it he made me 1 at grans house and i love it now hes making 1 at mummys house,well im off to school so keep a look out for my new pics of my bed.
Love and Angel Hugs
Andrew
xxxxx
Today im getting my new angel bed fitted,my granpa Jim is doing it he made me 1 at grans house and i love it now hes making 1 at mummys house,well im off to school so keep a look out for my new pics of my bed.
Love and Angel Hugs
Andrew
xxxxx
Tuesday, January 8, 2008
Operation Cancelled
Hiya again everyone
Today we went to the hospital for 11am for Andrews operation we were taking upstairs to the waiting area,we got andrew in to his pjs and the nurse came round to ask some questions she said he would be second to get his operation prob late afternoon,then a doctor came round and checked Andrew over to make sure he was fit for the operation,all was fine so we were set to go,we took Andrew and Darren round to the play area then a nurse came round asking to speak to me, i was told his operation was cancelled as the Dr doing the operation was ill and he had to cancel.Andrew has been booked in again for the 29th January so heres hoping that operation will go ahead,thank you everybody that sent Andrew good luck messages xxxxxxx
Today we went to the hospital for 11am for Andrews operation we were taking upstairs to the waiting area,we got andrew in to his pjs and the nurse came round to ask some questions she said he would be second to get his operation prob late afternoon,then a doctor came round and checked Andrew over to make sure he was fit for the operation,all was fine so we were set to go,we took Andrew and Darren round to the play area then a nurse came round asking to speak to me, i was told his operation was cancelled as the Dr doing the operation was ill and he had to cancel.Andrew has been booked in again for the 29th January so heres hoping that operation will go ahead,thank you everybody that sent Andrew good luck messages xxxxxxx
Monday, January 7, 2008
Operation time
Hiya everyone
Well today is monday the day before Andrew operation the last couple of days iv been feeling a little scared as to weather its the right thing to do,only as im thinking ahead for him and having to be in pain,iv had lots of support messages on the Angelman syndrome forum from other mums and grannies and i would like to thank them,thank you all,and also all my friends who are sending me little good luck messages thank you to you all too.
Im here packing Andrews suitcase and hes unpacking it finding it very funny he has no clue whats going to happen so hope hes not going to fall out with me after lol.
I would also like to say a big thank you to my sister Kimberley who is coming with us tomorrow to sit with myself,Nick and Darren while we wait for Andrew and to help with looking after Darren,Thank you Kim.
xxxxxx
Well ill keep you all posted xxxx
Love
Catrina
xxxx
Well today is monday the day before Andrew operation the last couple of days iv been feeling a little scared as to weather its the right thing to do,only as im thinking ahead for him and having to be in pain,iv had lots of support messages on the Angelman syndrome forum from other mums and grannies and i would like to thank them,thank you all,and also all my friends who are sending me little good luck messages thank you to you all too.
Im here packing Andrews suitcase and hes unpacking it finding it very funny he has no clue whats going to happen so hope hes not going to fall out with me after lol.
I would also like to say a big thank you to my sister Kimberley who is coming with us tomorrow to sit with myself,Nick and Darren while we wait for Andrew and to help with looking after Darren,Thank you Kim.
xxxxxx
Well ill keep you all posted xxxx
Love
Catrina
xxxx
Saturday, January 5, 2008
im nearly walking
hiya everyone
well not been on in a long time mummy is silly and forgot to pay the bill,silly silly mummy,well ill tell u a little about whats been happening,school had finished for santa coming,i got loads he was good to both me and Darren lucky us so now we have loads of new toys to play with,oh need to say thank you to alastair he got me some really cool pressies love the mirror im just so handsome.
About a week before christmas i took 2 steps by myself mummy was crying,as ever,but the best bit was on christmas day uncle kevin and auntie kimbie were up so i wanted to show off i walked a whole 3 foot to the tv all by myself and again mummy was crying,well nearly this time and so was auntie kimbie,i love making people cry.
Now mummy keeps following me about with this camcorder thing,dont know why like im goin to walk when shes following me videoing ill just wait till shes not expecting it again and has no camera and do it again hehe.
well not much else has happened im going into hospital on the 8th boohoo but it will make me better so thats the best bit.
Love and Angel Hugs (hair pulling hair eating and sloppery kisses)
Andrew
xxxx
well not been on in a long time mummy is silly and forgot to pay the bill,silly silly mummy,well ill tell u a little about whats been happening,school had finished for santa coming,i got loads he was good to both me and Darren lucky us so now we have loads of new toys to play with,oh need to say thank you to alastair he got me some really cool pressies love the mirror im just so handsome.
About a week before christmas i took 2 steps by myself mummy was crying,as ever,but the best bit was on christmas day uncle kevin and auntie kimbie were up so i wanted to show off i walked a whole 3 foot to the tv all by myself and again mummy was crying,well nearly this time and so was auntie kimbie,i love making people cry.
Now mummy keeps following me about with this camcorder thing,dont know why like im goin to walk when shes following me videoing ill just wait till shes not expecting it again and has no camera and do it again hehe.
well not much else has happened im going into hospital on the 8th boohoo but it will make me better so thats the best bit.
Love and Angel Hugs (hair pulling hair eating and sloppery kisses)
Andrew
xxxx
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