Hello
weve not posted in along time a lot has been happening,well first of all thats Andrew now in primary 2 and he is loving it hes coming on so well with his indapendence hes now feeding himself using both fork and spoon and can feed himself from yoghurt tubs,also on the 21st November Andrew started walking officially unaided it was amazing to see i cried for days after,he was doing so well untill he fell at his out of school club and burst his nose open,he is now away back to the beginning to scared to walk along in case he falls again he will hopefully get their he just needs to build his confidence back up.
Andrew has also been having a few seizure which had lead to him being put on Epilim as well as the Keppra,Andrew continued to fit so his Epilim was uped to 7.5ml morning and night and his Keppra 2.5ml morning and night,Andrew fits are getting worse,the drs at the hospital are not to sure why this continues to happen,but hopefully we will get to the bottom of it soon untill then Andrew has to have colobzam if he has 2 or more drop seizures a day,if Andrew is to fall into a seizure we have now to administer 0.8ml of Epistatus,as before he was on 0.4ml but it wasnt working and Andrew contunied to fit even when we arrived at the hospital,but we will see what happens here weve not had to use 0.8ml yet so were hoping we wont need to and that all the meds hes on will help.
Andrew been off school the last few weeks as hes had the cold,but with Andrew immune system beng so weak hes had it for longer than usual hes also being sick alot which we cant explain,he did go back to school but was only their a few days and was sent him ill again so hes been off the last week or so,spending time with mummy and getting upto mischive,hes getting better and should hopefully ba back at school tomorrow but their is only 2 days left before they finish for christmas,so ill see in the morning how i feel abput sending him to keen incase he gets ill again and is ill through christmas.
Well thast all for now hope you all have a great Christmas and a happy new year.
Love
Catrina,Nick,Angel Andrew and Darren
xxxxxxxxxx
me and my new glasses
looking cool
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3 comments:
Hello i have a daughter with anglemans syndrome i was wondering if you could send me some of youe experiences and different things you do with andrew. also my daughter dosen't sleep at nigh and the doctors won't give her anything else because the medicine we had didn't work she also is 2-years old diagnosed at 15 months.
How brilliant to find your blog! I've been a carer for a young man with AS for the last 5 years, and he's now 17, cheeky, fun, and so affectionate! Just wanted to say good for your mum not listening to the doctors and having you all the same. What a star! Actually, that goes for both of you! xx
hiya to you both if ur back on andrew blog and would like to get in touch e-mail me at catrinamcmartin84@hotmail.co.uk
catrina xx
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